– September 2023

There is widespread variation in the instance and quality of meaningful patient involvement across the 42 Integrated Care Systems (ICSs) of NHS England. This is seen throughout the structures, policies, and processes of the ICSs, from the omission of patient representatives on decision-making bodies – such as the Integrated Care Boards (ICBs) – to the neglect of clear consultation when decisions are made concerning a patient’s care.

Research and analysis conducted by the MTG has found that where a patient lives is the biggest determinant to whether they are involved in their care meaningfully, or at all.

Download the report here