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Meaningful patient involvement

The MTG’s Forum of Meaningful Patient Involvement
– January 2024

The MTG believes that those who receive care and interact with the NHS hold invaluable insights into the delivery of healthcare and how this could be improved. To support this ambition, patient group members of the MTG engaged in a consultation to share their experiences in their involvement with committees and working groups set up by the NHS and other organisations, including NICE, the Care Quality Commission, HealthWatch, Integrated Care Systems (ICS) or Royal Colleges.

The consultation highlighted several areas where improvements can be made in the effort to improve the patient experience within committees and working groups.

Download the report here.

The MTG guide for Integrated Care Systems
– September 2023

There is widespread variation in the instance and quality of meaningful patient involvement across the 42 Integrated Care Systems (ICSs) of NHS England. This is seen throughout the structures, policies, and processes of the ICSs, from the omission of patient representatives on decision-making bodies – such as the Integrated Care Boards (ICBs) – to the neglect of clear consultation when decisions are made concerning a patient’s care.

Research and analysis conducted by the MTG has found that where a patient lives is the biggest determinant to whether they are involved in their care meaningfully, or at all.

Download the report here.

The MTG guide to meaningful patient involvement

The MTG guide to meaningful patient involvement
– December 2022

In 2022, the MTG formed a working group of patient group representatives in order to develop a guide to meaningful patient involvement. This guide identifies what is meant by meaningful patient involvement and highlights what organisations across the healthcare system are doing to involve patients in decision making processes.

It highlights good practice, identifies areas for improvement, and sets out a blueprint for what the MTG believes meaningful patient involvement should look like, with a series of recommendations.

Download the report here.

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